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About 4,365 results

ALLMedicine™ Bleeding Disorders Center

Research & Reviews  2,095 results

"They Don't Really Take My Bleeds Seriously": Barriers to Care for Women with Inherited...
https://doi.org/10.1111/jth.15311
Journal of Thrombosis and Haemostasis : JTH; Arya S, Wilton P et. al.

Mar 28th, 2021 - Women with inherited bleeding disorders experience excessive bleeding that may impair their quality of life, making early diagnosis and treatment critical. However, the experiences of these women regarding access to care has been minimally describ...

Haemophilia, state of the art and new therapeutic opportunities, a regulatory perspective.
https://doi.org/10.1111/bcp.14838
British Journal of Clinical Pharmacology; Tomeo F, Mariz S et. al.

Mar 27th, 2021 - Haemophilia A and B are rare bleeding disorders. Over the past decades, they have been transformed from debilitating diseases to manageable conditions in the Western world. However, optimizing haemophilia care remains challenging in developing cou...

SFP Clinical Recommendation: Management of individuals with bleeding or thrombotic diso...
https://doi.org/10.1016/j.contraception.2021.03.016
Contraception Lee JK, Zimrin AB et. al.

Mar 26th, 2021 - Individuals who have bleeding disorders, thrombophilias, a history of venous thromboembolism (VTE), or who are taking anticoagulation medication for other reasons may present for abortion. Clinicians should be aware of risk factors and histories c...

Congenital Combined Bleeding Disorders, a Comprehensive Study of a Large Number of Iran...
https://doi.org/10.1177/1076029621996813
Clinical and Applied Thrombosis/hemostasis : Official Jou... Ahmadi SE, Jazebi M et. al.

Mar 25th, 2021 - Congenital combined bleeding disorders (CBDs) are extremely rare disorders which mainly occur in regions with a high rate of consanguineous marriage. These disorders can present with a variety of symptoms ranging from mucocutaneous bleeding to lif...

Challenges of antithrombotic therapy in the management of cardiovascular disease in pat...
https://doi.org/10.1111/hae.14296
Haemophilia : the Official Journal of the World Federatio... Cohen OC, Bertelli M et. al.

Mar 22nd, 2021 - Cardiovascular events in patients with inherited bleeding disorders are challenging to manage. The risk of bleeding secondary to antithrombotic treatment must be balanced against the risk of thrombosis secondary to haemostatic therapy. Patients wi...

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Guidelines  21 results

Natural history study of factor IX deficiency with focus on treatment and complications (B‐Natural)
https://onlinelibrary.wiley.com/doi/10.1111/hae.14139
Haemophilia Shapiro AD

Dec 4th, 2020 - Haemophilia B (HB) is less well studied than haemophilia A (HA); despite similarities between the two inherited bleeding disorders, important differences remain that require further research.

Current practices in hemophilic patients undergoing orthopedic surgery - a systematic review
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7588779/
Experimental and Therapeutic Medicine; Badulescu OV

Oct 13th, 2020 - Hemophilia is an inherited disease that requires a different approach in order to evaluate, monitor and treat patients. Despite the great advances in therapeutic agents that have emerged, reports on the impact of monitoring outcomes on treatment d...

Screening and Management of Bleeding Disorders in Adolescents With Heavy Menstrual Bleeding: ACOG COMMITTEE OPINION, Number 785
https://www.acog.org/Clinical-Guidance-and-Publications/Committee-Opinions/Committee-on-Adolescent-Health-Care/Screening-and-Management-of-Bleeding-Disorders-in-Adolescents-With-Heavy-Menstrual-Bleeding

Aug 21st, 2019 - Heavy menstrual bleeding is defined as excessive menstrual blood loss that interferes with a woman's physical, social, emotional, or material quality of life. If obstetrician–gynecologists suspect that a patient has a bleeding disorder, they shoul...

Recommendations for the clinical interpretation of genetic variants and presentation of...
https://doi.org/10.1111/hae.13637
Haemophilia : the Official Journal of the World Federatio... Gomez K, Laffan M et. al.

Jan 21st, 2019 - This paper sets out good practice for clinicians involved in interpreting variant reports for patients with inherited bleeding disorders. It is aimed primarily at doctors, nurses and allied healthcare professionals who may not have had specific tr...

No. 163-Gynaecological and Obstetric Management of Women With Inherited Bleeding Disord...
https://doi.org/10.1016/j.jogc.2017.11.036
Journal of Obstetrics and Gynaecology Canada : JOGC = Jou... Demers C, Derzko C et. al.

Feb 15th, 2018 - The prevalence of bleeding disorders, notably von Willebrand disease (vWD), among adult women with objectively documented menorrhagia is consistently reported to be 10% to 20% and is even higher in adolescents presenting with menorrhagia. Diagnost...

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Clinicaltrials.gov  2,147 results

"They Don't Really Take My Bleeds Seriously": Barriers to Care for Women with Inherited...
https://doi.org/10.1111/jth.15311
Journal of Thrombosis and Haemostasis : JTH; Arya S, Wilton P et. al.

Mar 28th, 2021 - Women with inherited bleeding disorders experience excessive bleeding that may impair their quality of life, making early diagnosis and treatment critical. However, the experiences of these women regarding access to care has been minimally describ...

Haemophilia, state of the art and new therapeutic opportunities, a regulatory perspective.
https://doi.org/10.1111/bcp.14838
British Journal of Clinical Pharmacology; Tomeo F, Mariz S et. al.

Mar 27th, 2021 - Haemophilia A and B are rare bleeding disorders. Over the past decades, they have been transformed from debilitating diseases to manageable conditions in the Western world. However, optimizing haemophilia care remains challenging in developing cou...

SFP Clinical Recommendation: Management of individuals with bleeding or thrombotic diso...
https://doi.org/10.1016/j.contraception.2021.03.016
Contraception Lee JK, Zimrin AB et. al.

Mar 26th, 2021 - Individuals who have bleeding disorders, thrombophilias, a history of venous thromboembolism (VTE), or who are taking anticoagulation medication for other reasons may present for abortion. Clinicians should be aware of risk factors and histories c...

Congenital Combined Bleeding Disorders, a Comprehensive Study of a Large Number of Iran...
https://doi.org/10.1177/1076029621996813
Clinical and Applied Thrombosis/hemostasis : Official Jou... Ahmadi SE, Jazebi M et. al.

Mar 25th, 2021 - Congenital combined bleeding disorders (CBDs) are extremely rare disorders which mainly occur in regions with a high rate of consanguineous marriage. These disorders can present with a variety of symptoms ranging from mucocutaneous bleeding to lif...

Challenges of antithrombotic therapy in the management of cardiovascular disease in pat...
https://doi.org/10.1111/hae.14296
Haemophilia : the Official Journal of the World Federatio... Cohen OC, Bertelli M et. al.

Mar 22nd, 2021 - Cardiovascular events in patients with inherited bleeding disorders are challenging to manage. The risk of bleeding secondary to antithrombotic treatment must be balanced against the risk of thrombosis secondary to haemostatic therapy. Patients wi...

see more →

News  101 results

Bleeding Disorder Diagnoses Delayed by Years in Girls and Women
https://www.medscape.com/viewarticle/947192

Mar 9th, 2021 - Diagnosis of bleeding disorders in girls and women can lag behind diagnosis in boys and men by more than a decade, meaning needless delays in treatment and poor quality of life for many with hemophilia or related conditions. "There is increasing a...

Natural history study of factor IX deficiency with focus on treatment and complications (B‐Natural)
https://onlinelibrary.wiley.com/doi/10.1111/hae.14139
Haemophilia Shapiro AD

Dec 4th, 2020 - Haemophilia B (HB) is less well studied than haemophilia A (HA); despite similarities between the two inherited bleeding disorders, important differences remain that require further research.

Current practices in hemophilic patients undergoing orthopedic surgery - a systematic review
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7588779/
Experimental and Therapeutic Medicine; Badulescu OV

Oct 13th, 2020 - Hemophilia is an inherited disease that requires a different approach in order to evaluate, monitor and treat patients. Despite the great advances in therapeutic agents that have emerged, reports on the impact of monitoring outcomes on treatment d...

Alnylam's gene-silencing efforts get $2 billion Blackstone backing
https://www.reuters.com/article/us-alnylam-pharms-investment-blackstone/alnylams-gene-silencing-efforts-get-2-billion-blackstone-backing-idUSKCN21V137

Apr 13th, 2020 - (Reuters) - Blackstone Group Inc said on Monday it would invest $2 billion in Alnylam Pharmaceuticals Inc through an equity-and-debt deal, giving the drugmaker a financial boost without tapping into currently volatile stock markets for funds. Alny...

Webinar confronts unique issues for the bleeding disorders community facing COVID-19
https://www.mdedge.com/hematology-oncology/article/219466/coronavirus-updates/webinar-confronts-unique-issues-bleeding?channel=64518
Mark S. Lesney

Mar 23rd, 2020 - In a webinar conducted on March 20, Leonard Valentino, MD, president and CEO of the National Hemophilia Foundation (NHF), provided specific information of relevance and some reassurance to the bleeding disorders community on the impact of COVID-19.

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Patient Education  1 results see all →