ALLMedicine™ Cystic Fibrosis Center

May 14th, 2021 - In our study we aimed to analyze sleep variability and activity in patients with cystic fibrosis (CF) during their hospital stay. Forty-three CF patients were recruited and have been divided into two subgroups: exacerbated (n = 18) and non-exacerb...

May 13th, 2021 - There is no consensus on how best to measure responses to interventions among children and adults with cystic fibrosis (CF). We have systematically reviewed and summarised the characteristics and measurement properties of tests and tools that have...

May 13th, 2021 - Non-tuberculous mycobacteria (NTM) are an emerging group of pulmonary infectious pathogens of increasing importance to the management of patients with cystic fibrosis (CF). NTM include slow-growing mycobacteria such as Mycobacterium avium complex ...

May 13th, 2021 - Aminoglycosides are commonly used for the treatment of Pseudomonas aeruginosa (PsA) in the setting of acute pulmonary exacerbations (PEx) in pediatric patients with cystic fibrosis (CF). There are controversies and practice differences between ins...

May 13th, 2021 - To describe the symptoms and clinical course of SARS-CoV-2 infection in patients with cystic fibrosis (CF). We carried out a prospective multicentre cohort study based on 32 CF centres and 6597 patients. Centres were contacted to collect baseline ...

Jun 22nd, 2020 - The Academy of Nutrition and Dietetics Evidence Analysis Center conducted a systematic review of the literature to develop an evidence-based practice guideline for primary nutrition issues in cystic fibrosis (CF). This guideline is designed to com...

Apr 2nd, 2019 - Types of DTC genetic tests A broad range of genetic test types are offered DTC, including: Carrier testing for diseases such as cystic fibrosis and hemochromatosis Pharmacogenomic testing Testing for predisposition to complex diseases such as her...

Feb 20th, 2019 - The continued innovation in cell-free technology combined with the desire for a maternal blood test to predict the risk for fetal genetic disorders during a pregnancy has broadened the application of cell-free DNA screening beyond aneuploidy to si...

Jan 31st, 2019 - Although home oxygen therapy is commonly required in the care of children, there is a striking lack of empirical evidence regarding implementation, monitoring, and discontinuation of supplemental oxygen therapy. The panel formulated and provided t...

Jun 21st, 2018 - Wide variations exist in how physicians manage the nutritional aspects of children affected by acute pancreatitis (AP), acute recurrent pancreatitis (ARP), and chronic (CP) pancreatitis. Better consensus for optimal management is needed. This cons...

May 14th, 2021 - In our study we aimed to analyze sleep variability and activity in patients with cystic fibrosis (CF) during their hospital stay. Forty-three CF patients were recruited and have been divided into two subgroups: exacerbated (n = 18) and non-exacerb...

May 13th, 2021 - There is no consensus on how best to measure responses to interventions among children and adults with cystic fibrosis (CF). We have systematically reviewed and summarised the characteristics and measurement properties of tests and tools that have...

May 13th, 2021 - Non-tuberculous mycobacteria (NTM) are an emerging group of pulmonary infectious pathogens of increasing importance to the management of patients with cystic fibrosis (CF). NTM include slow-growing mycobacteria such as Mycobacterium avium complex ...

May 13th, 2021 - Aminoglycosides are commonly used for the treatment of Pseudomonas aeruginosa (PsA) in the setting of acute pulmonary exacerbations (PEx) in pediatric patients with cystic fibrosis (CF). There are controversies and practice differences between ins...

May 13th, 2021 - To describe the symptoms and clinical course of SARS-CoV-2 infection in patients with cystic fibrosis (CF). We carried out a prospective multicentre cohort study based on 32 CF centres and 6597 patients. Centres were contacted to collect baseline ...

May 10th, 2021 - NEW YORK (Reuters Health) - An analysis of whole genome data from cystic fibrosis patients reveals how multi-drug resistant pathogens evolve and suggests that Mycobacterium abscessus infection be treated promptly, contrary to current medical pract...

Mar 31st, 2021 - A soft, flexible device that sticks on skin to capture sweat and measure sweat chloride may help doctors diagnose cystic fibrosis in infants, according to new data published online March 31 in Science Translational Medicine. But not everyone is co...

Mar 15th, 2021 - (Reuters) - The success of COVID-19 vaccines based on messenger RNA (mRNA) is smoothing the way for using the novel technology not only in other vaccines, but possibly as treatments for cystic fibrosis, cancer and other hard-to-treat diseases. Sci...

Jan 31st, 2021 - Spinal muscular atrophy (SMA) consists of a group of autosomal-recessive disorders characterized by progressive weakness of the lower motor neurons. Estimates suggest 1 in 6000 to 1 in 10,000 individuals are affected, making SMA the second most co...

Nov 22nd, 2020 - Telehealth is widely accepted among individuals with cystic fibrosis (CF) and the physicians who treat them, according to three new studies. The surveys examined attitudes during the COVID-19 pandemic, which complicates interpretation of the surve...